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Channel 11 speaks to family of 2-year-old girl with rare gene mutation after leaving hospital
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Channel 11 speaks to family of 2-year-old girl with rare gene mutation after leaving hospital

Two-year-old Clementine has finally returned home after her miraculous recovery.

St. After 16 months at the Ronald McDonald House in St. Louis, all was well with his doctors.

>> McCandless toddler with rare gene mutation allowed to return home after treatment

Clementine is just one in 10 people diagnosed with a mutation in the TLR8 gene, a rare condition. Clementine’s mother, Tanner Blackham, said returning was surreal.

“We left here feeling pretty confident that we were going to leave with a healthy child and a child leaving us, and now coming home with two healthy little ones in the back of our car was the best feeling ever,” Tanner Blackham said. Clementine’s mother.

We have been following Clementine’s story since she was 8 months old. His family initially lived in St. Petersburg for about three months. He expected to stay in St. Louis.

“Those 100 days were probably the hardest and scariest days as we did the chemotherapy, the radiation, and the transplant,” Blackham said.

Clementine received a life-saving bone marrow transplant from an anonymous donor in Europe. The family planned to return home this time last year, but she caught a cold, which set them back a year.

“After his setback with the cold, we played this up-and-down game day after day where we would be thankful he was alive but be in fear the rest of the day,” Blackham said.

Blackham documents their journey online. They weren’t sure Clementine would make it. There was uncertainty for months. Blackham said they’ve had good news in the last few months. Clementine’s labs are stable and she is expected to live a long life.

Clementine’s father, Tim Blackham, said they really appreciated all the support from the community. They are also very grateful to Clementine’s doctor.

“Our doctor, who had a wonderful soul, healed the incurable,” Blackham said.

Currently, Clementine remains in isolation and is still on multiple medications. St. Petersburg every two months for follow-up treatments. He’ll have to go to St. Louis. Blackham said they hope Clementine’s story will help the next family.

“The next family is not so much in the dark about what that diagnosis looks like or what the outcome of that diagnosis might be,” Blackham said.

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